Consumer Empowerment in Healthcare : Consumer Empowerment in Healthcare What We All Need to Know
By: Jill Burrington-Brown, MS, RHIA Supported in part by:
National Focus : National Focus American Health Information Community (AHIC)
Mission: To help advance efforts to meet the goal of President Bush’s call for most Americans to have electronic health records within 10 years.
Focus: Breakthrough Projects
Categories of Breakthrough Projects : Categories of Breakthrough Projects Consumer Empowerment
Health Improvement
Public Health Protection
Consumer Empowerment Breakthrough Projects : Consumer Empowerment Breakthrough Projects My Personal Health Record (PHR)
My Medication Record
My Health Record Locator
My Registration Information
My Personal Health Record : My Personal Health Record AHIMA Definition of PHR:
“An electronic, universally available, lifelong resource of health information needed by individuals to make health decisions. Individuals own and manage the information in the PHR, which comes from healthcare providers and the individual. The PHR is maintained in a secure and private environment, with the individual determining rights of access. The PHR is separate from and does not replace the legal record of any provider.”
My Personal Health Record : My Personal Health Record Web-based Resource from AHIMA: www.MyPHR.com.
Consumer Benefits of a PHR : Consumer Benefits of a PHR Helps avoid medical errors
Convenient
Helps avoid duplication of care
Tool for monitoring patients with chronic or multiple conditions
PHR: Consumer Concerns : PHR: Consumer Concerns Data Use
Can the consumer move their data if they change vendors?
How will the vendor use the data?
What happens when the consumer dies?
Does nonpayment affect access to data?
PHR: Consumer Concerns : PHR: Consumer Concerns Provider Access
How does your provider get access to your data? (pin, written authorization)
What happens in an emergency?
How is your identity verified?
PHR: Consumer Concerns : PHR: Consumer Concerns Adding Health Data to your PHR
If your provider can view it, can he also update it?
How do you give and take away update rights?
Can the consumer limit what is added to the PHR by the provider?
Can the consumer change or delete information added?
PHR: Consumer Concerns : PHR: Consumer Concerns Security Controls
Encryption?
Firewalls?
Virus Protection?
Unique User ID?
Disaster Recovery?
Audit Controls?
Incident Management?
My Medication Record : My Medication Record Definition: A medication history, in one location, with all of the current data. It would be available to the individual and to each authorized healthcare provider.
Consumer Benefits of a Medication Record : Consumer Benefits of a Medication Record Educational
Track adverse reactions
Prevent drug-to-drug interactions
Continuity of Care
Medication Record: Consumer Concerns : Medication Record: Consumer Concerns Security and Privacy must be addressed.
Data integrity of the record:
What has been prescribed vs. what is really taken?
Are over-the-counter substances included?
Must be updated and shared frequently
My Health Record Locator : My Health Record Locator An Electronic Health Record Locator would help patients and clinicians locate lab work, test results, and other care information held by all healthcare sources. It would be a pointer to the information, not the actual information.
Health Record Locator: Consumer Benefits : Health Record Locator: Consumer Benefits Enables access to all known information.
Can identify episodes of care.
Can track who has accessed the record.
Health Record Locator: Customer Concerns : Health Record Locator: Customer Concerns Privacy
Identification of core data elements
Correct identification of individuals
Opt in or opt out preferences?
My Registration Information : My Registration Information Single, electronic health registration containing the following:
Name
Address
Insurance Information
Medications
Allergies
My Registration Information: Consumer Benefits : My Registration Information: Consumer Benefits Patient can update it and share it with care providers
Provides the clinicians with a core set of important patient data
My Registration Information Consumer Concerns : My Registration Information Consumer Concerns 1. Patient information changes frequently
Privacy and Security: Would patients be able to control who gets the data?
Clinicians would have to be linked to benefit from the electronic application
Conclusion : Conclusion The Consumer Empowerment initiatives will help individuals to be more involved and in control of their healthcare.
Your HIM Professionals are a valuable resource! : Your HIM Professionals are a valuable resource! Working together we can realize all the benefits of consumer empowerment!
Resources : Resources American Health Information Community is found at http://www.hhs.gov/healthit/ahic.html
American Health Information Community Potential Breakthroughs are found at http://www.hhs.gov/healthit/breakthrough.html
Smith, Clarice. “No title,” March 2006 Journal of AHIMA
Web-based Resource from AHIMA: www.MyPHR.com.