Guidelines for Mesothelioma Patients

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NCCN Guidelines for Patients: Malignant Pleural Mesothelioma presented with support from the national law firm of Baron & Budd.

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Malignant NCCN Guidelines for Patients ™ Version 2011 NCCN Guidelines for Patients ™ : Malignant Pleural Mesothelioma Presented with support from the national law firm of Baron & Budd Also available at NCCN.com

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Table of contents Part 1 About these guidelines ...................... 4 1.1 NCCN Guidelines for Patients™ 1.2 NCCN Clinical Practice Guidelines in Oncology™ 1.3 NCCN Guidelines Panel Members 1.4 How to use this booklet Part 4 Treating malignant pleural mesothelioma....................... 19 4.1 Choosing your treatment 4.2 Getting a 2 nd opinion 4.3 Malignant pleural mesothelioma treatments 4.4 What are clinical trials? 4.5 Controlling symptoms Part 2 About my cancer ............................... 8 2.1 What is the pleura? 2.2 What is malignant pleural mesothelioma? 2.3 Signs of malignant pleural mesothelioma 4.6 Supportive care Part 5 Beyond usual treatment .................. 28 5.1 Aren’t there other treatments? 5.2 What else can I do? Part 3 Tests for malignant pleural mesothelioma...................... 12 3.1 Do I have malignant pleural mesothelioma? 3.2 The pathology report 3.3 Stages of malignant pleural mesothelioma 3.4 Types of malignant pleural mesothelioma 5.3 Caring for caregivers NCCN Guidelines for Patients™: Malignant Pleural Mesothelioma Version 1.2011 2

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Table of contents Tableofcontents Part 6 A step-by-step treatment guide....... 32 6.1 Diagnostic tests for malignant pleural mesothelioma 6.2 Pre-treatment tests for malignant pleural mesothelioma 6.3 Surgical tests for stages I–III epithelial or mixed mesothelioma 6.4 Surgery for stages I–III epithelial or mixed mesothelioma 6.5 Treatment for stages I–IV mesothelioma unfit for surgery Part 8 Tools ................................................. 43 8.1 Questions to ask about testing for mesothelioma 8.2 Questions to ask about treating mesothelioma 8.3 Questions to ask about clinical trials 8.4 Suggestions for taking care of yourself 8.5 Suggestions for taking care of caregivers 8.6 A brief guide to treatment for mesothelioma 8.7 Personal treatment record Part 7 Dictionary .......................................... 39 © 2011 National Comprehensive Cancer Network, Inc. All rights reserved. The NCCN Guidelines for Patients™ and illustrations herein may not be reproduced in any form for any purpose without the express written permission of the NCCN. NCCN Guidelines for Patients™: Malignant Pleural Mesothelioma Version 1.2011 3