Starting an ADHD Support Group : Starting an ADHD Support Group Children and Adults with ADHD National Office Introduction: Introduction Welcome to CHADD and the hundreds of volunteers leading our many ADHD support groups around the country. This orientation will provide you with the basic information to get started. And help you decide if you would like to start a support group in your community. Introduction: Introduction CHADD support groups offer a valuable service not only by providing resources and support, but also for socializing and information sharing. Sharing with other families and adults managing ADHD every day is empowering for all participants. You can make this happen. Topics in this Orientation: Topics in this Orientation What is a CHADD Associated Support Group (CHADD Associates) What is your role as a new volunteer starting an ADHD support group? How do you recruit others to help you? Where can you find a place to meet? How do you publicize the new ADHD support group? How do you facilitate a support group meeting? How you can become a CHADD coordinator and what does it entail? Answers to our most frequently asked questions. Policies for you to review and the forms that you will need to return to CHADD to get started. About CHADD’s Affiliates: About CHADD’s Affiliates Ch ildren and Adults with A ttention- D eficit/Hyperactivity D isorder (CHADD), is a national non-profit, tax-exempt Section 501 (c) (3) organization providing education, advocacy and support for individuals with ADHD. The organization has a small national staff, which manages the day-to-day responsibilities, while its volunteer Board of Directors sets policy and oversees the organization's well being. CHADD and its Volunteer-Managed Affiliates: CHADD and its Volunteer-Managed Affiliates CHADD has 4 kinds of local groups: CHADD chapters CHADD satellites CHADD branches CHADD associated support groups What is an Associated Support Group (CHADD Associates): What is an Associated Support Group (CHADD Associates) This is the designation for our brand new groups who have not yet met all the requirements to become an official CHADD group. This is where you will start. You will be bringing together a group of individuals who are interested in having a CHADD Satellite established in their community. You will be provided with goals that are necessary to accomplish in order to become an official CHADD group and receive dues from CHADD. What is your role as a new volunteer?: What is your role as a new volunteer? All our new volunteers are individuals who are committed to the idea of having a CHADD group available in their community. As a new volunteer you may either become a coordinator of a CHADD group or recruit others to act as coordinators. As first steps you will: complete and submit the necessary forms to work with CHADD, recruit others to help you get the word out in your community host your first ADHD support group Once your support group is operating CHADD will help you to complete the steps to become an official, dues sharing CHADD satellite. Getting Your Group Started: Getting Your Group Started Volunteers, Location, What Type, Publicity and More Finding Volunteers: Finding Volunteers Find 2 coordinators: Identify 2 people that share your interest. Friends, professionals in the ADHD industry, other leaders in the community CHADD members Volunteermatch.com Finding Volunteers: Finding Volunteers Recruit Do not wait for them to volunteer; ask for them to help. Try your local places of worship, schools, volunteermatch.com, local volunteer centers and the newspaper. Pass around a clipboard at meetings with suggestions of possible areas where attendees can assist. (Refreshments, distribute handouts, set up meeting room, disassemble meeting room, greeter, etc.) Interested people should be called to discuss how their needs/talents can be successfully matched. Your Meeting Audience: Who will attend? Parents/Caregivers Group Adults with ADHD Support Group Teens/Adolescents with ADHD Group Your Meeting Audience What kind of group?: Peer-to-Peer Groups Discussion group Online support group What kind of group? Planning your meetings: Decide how often your group will meet Monthly More often/Less often? Planning your meetings Getting Ready – Location?: Decide on a central location – if you have low attendance, try another place Transportation issues? Hospital Library meeting rooms Public schools College campuses Local company meeting rooms Places of worship Local coffee shop Insurance concerns Getting Ready – Location? Getting Ready - Publicity: Decide how to get the word out: Flyers (samples available in ‘File Cabinet’): Visit with and share flyers/meeting information with: Local professional offices Local schools/colleges/universities Local religious institutions Public Library Local hospitals Local community centers Other support groups Newspapers Have a Web presence: $Meetup.com/(free)groupsites.com/websites/Email address (Google, Yahoo, Hotmail) Ask for RSVPs ($meetup.com does this for you) Phone number? Getting Ready - Publicity Programming: So, what will you do in your meetings? Strictly support? Educational component? Educational rights information Treatment options Behavior management Co-Occurring conditions Organization Job Seeking Books/Video Discussion Programming Agenda for the First Meeting : Please visit the ‘file cabinet’ for a full copy of the sample agenda. Post the disclaimer Have attendees complete sign in sheet Handout materials (Download materials from www.help4adhd.org website) Provide food/beverages Meeting After the Meeting Agenda for the First Meeting Frequently Asked Questions: Frequently Asked Questions More about getting started Frequently Asked Questions : Frequently Asked Questions What is the commitment? Facilitating support group meetings once a month. Checking in with CHADD staff/volunteers on your progress, issues, concerns. Recruiting committed volunteers and publicizing your meetings will take additional time. Publicizing your meetings to the public through the media, flyers and networking with others. Seeking out answers to questions/answering questions from the public. What Are the Steps to Becoming an Official CHADD Group?: What Are the Steps to Becoming an Official CHADD Group? Before becoming an official “CHADD Satellite,” Associated support groups will be required to meet the following goals. Find a coordinator and co-coordinator. CHADD satellites require two volunteer leaders (coordinators). Both coordinators will be required to be active dues paying CHADD members, have no conflicts of interest, and be committed to leading a CHADD satellite in their community for at least 12 months. Steps to Becoming an Official CHADD Support Group: Find a meeting location. Advertise the support group meetings to your community. Meet for at least 4 months (meetings typically are once per month. Groups often do not meet in December, June, July and August due to low attendance.) You will also complete our online volunteer, conflict of interest, and confidentiality agreements. Submit sign in sheets to CHADD for each of your four meetings. Steps to Becoming an Official CHADD Support Group Frequently Asked Questions: Frequently Asked Questions What should I name the group? As you begin we suggest you use the name of your community with ADHD Support Group: “Columbia ADHD Support Group” Once you have become official, you can add CHADD to the name. Frequently Asked Questions: Frequently Asked Questions Do I receive any financial support from CHADD? No, not yet. To receive a portion of dues, you must complete the steps to become official. These steps will ensure compliance with IRS regulations. But first we want to help you get your support group started. As a CHADD Satellite, you will receive a portion of all dues paid to CHADD from your geographic area. The more members you have, the more income you will receive. How Will CHADD Help?: How Will CHADD Help? CHADD has many resources available for you on our website. Be sure to become familiar with these resources. CHADD national staff will help you to get started by sending out your first request for volunteer assistance to people listed in CHADD’s database in your area. CHADD national will also send your first monthly e-mail to those in the community announcing support group meeting information. Information posted on CHADD’s resources website will help (updated often) If you have a suggestion on other ways we may be able to help, please let us know. Why do we require this first step before becoming an official CHADD satellite? : Why do we require this first step before becoming an official CHADD satellite? We want to slowly guide you through the development of a support group in your community. Often times people go through the process too quickly and have not built the foundation for success. We want you to be able to determine the interest and commitment from your community and volunteers before proceeding to the next step. We want to protect you/and other volunteers from becoming overwhelmed with the process and we want to see the ADHD support group succeed. Second Thoughts?: Second Thoughts? If being the coordinator of a support group is not for you, you can still get a support group started by helping us spread the word. Talk with other others about CHADD and how they may request information on the process of starting a support group locally. Offer to help even if you cannot take the lead. Policies and Forms: Policies and Forms More information about CHADD policies and forms that should be completed Conflict of Interest: Conflict of Interest CHADD does not endorse any provider, medication, treatment, publication or other ADHD related service. As a volunteer you must adhere to this policy. The Conflict of Interest Form let us know if you have an financial interest in any ADHD related business. Many of our volunteers do have such interests. If you do, we will help you to prevent any appearance of conflict of interest. Confidentiality : Confidentiality As a volunteer, the names and experiences of people who come to your support group must remain confidential. CHADD will be sharing contact information with you of people concerned about ADHD in your geographic area. Again, this information is confidential and cannot be shared with anyone for any purpose. The Confidentiality Form indicates your commitment to keep this information confidential. Support Group Sign In Sheet: Support Group Sign In Sheet A CHADD-provided attendance/sign-in sheet will be used at every meeting. The volunteer who will be coordinating the group, will send the sign-in sheets on a monthly basis in order to meet their satellite start-up goals. All volunteers maintain the confidentiality of all group participants. Next Steps: Next Steps Thank you so much for your interest! Next Steps: Next Steps Once you have completed all of your associated support group goals, please contact CHADD and let us know that you are ready to be a CHADD Satellite! You Make the Difference!: CHADD’s volunteers make all the difference to millions of people with ADHD or with ADHD in the family. We welcome you to this incredible community of people. And we thank you for your passion and commitment to helping others understand ADHD. You make the difference! You Make the Difference!