ABCs of IBD

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Meet your Webinar Presenters Angie DJ

The ABCs of IBD : 

The ABCs of IBD Brought to you by the IBD Transition Clinic at AFCH Summer 2010

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Abdominal Pain One of the most common symptoms of IBD If you have abdominal pain, your doctor will want to know… Where the pain is located Is it sharp or is it dull? Does it move (radiate)?

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Biopsy Biopsies are tissue samples that are obtained during colonoscopy and endoscopy Needed to make the diagnosis of IBD This images shows biopsy being taken during a colonoscopy

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One of the 2 main forms of IBD Characterized by inflammation that goes through ALL the layers of the GI tract Can involve the large intestine AND the small intestine Produces “skip” lesions Crohn’s Disease

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“Skip” lesions

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Another common symptom of IBD Diarrhea refers to loose and frequent bowel movements Sometimes, there is also blood in the stool Diarrhea

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Procedure used to diagnose and assess disease activity in IBD A flexible tube with a camera is placed inside the mouth or rectum and passed into the intestine 2 main procedures: Upper endoscopy Colonoscopy Endoscopy

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Patients with IBD may get a fever This may indicate an infection You should check your temperature if you feel feverish and let your doctor know Fever

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Provides a pathway where food is broken down and absorbed for energy, and waste is eliminated Includes everything from your mouth, where food comes in, to your bottom, where waste (stool) comes out Gastrointestinal (GI) tract

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You may have to stay in the hospital overnight, or even for several nights, when your IBD is first diagnosed, or when it is not well controlled. Sometimes, people have “flare-ups” when their IBD gets worse for a period of time. You may have to stay in the hospital during this time. When you get better, your IBD is “well-controlled” Hospital

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Inflammatory Bowel Disease (IBD) is a chronic inflammation process of the GI system There are two types of IBD: Crohn’s Disease and Ulcerative Colitis IBD is NOT the same as irritable bowel syndrome (IBS) IBD

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Sometimes, the inflammation that causes IBD can also cause inflammation of other parts of the body, like the joints. Some people with IBD can have joint pains called arthritis. Joint Pain

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There are over a million Americans living with IBD. Many of them are kids and young adults who develop IBD between ages 15 and 25. Nothing that you did or ate caused IBD Kids living with IBD

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IBD is not like a cold and will not go away on its own There is no cure for IBD, but there are treatments your doctor can give you to make you feel better Your IBD is “well-controlled” when you feel good and have few symptoms Lifelong disease

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Treatment for IBD can be medications like pills, liquids or enemas (medications that can go in your bottom) It is very important to remember to take your medications to keep your IBD well-controlled. Medications

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Eating or avoiding particular foods DOES NOT cause IBD; however, once IBD develops, certain foods can make symptoms worse. Because IBD affects the GI system, it can rob the body of certain nutrients, vitamins and minerals Talk to a dietician! Nutrition

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Extraintestinal manifestations of IBD Arthritis Eye pain Rashes Liver inflammation Other non-GI signs and symptoms

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Puberty may be delayed IBD can slow down growth and development Puberty

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Just because you have IBD, does not mean that you have to suffer Your doctor can help manage your disease to make sure that you can still do the things you want, while staying healthy and keeping your IBD “well-controlled.” This is called good quality of life. Quality of life

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Seeing a gastroenterologist (a doctor who specializes in IBD and diseases of the GI tract) will help you keep your IBD well-controlled Regular visits with a dietician and a counselor will also help keep you healthy IBD Transition Clinic at AFCH offers all of these services in one visit! Regular check-ups

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Sometimes people have negative or incorrect beliefs about kids who have IBD Just because you have IBD, does not mean that you can’t play sports, go to school or hang out with friends IBD is not contagious! Stigma

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There is no cure for IBD, but treatment is available to keep your disease well-controlled and to allow you to do the things you enjoy. Sometimes kids need surgery to get their IBD under good control Treatment

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2 types of IBD are Ulcerative Colitis and Crohn’s Disease Ulcerative Colitis involves the inner layer of the intestine, while Crohn’s disease involves all the layers of the GI tract Ulcerative Colitis only involves the colon (large intestine), while Crohn’s Disease can involve both the small and large intestine Ulcerative Colitis

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Because IBD affects your diet and your intestines, it can cause vitamin deficiencies like low iron levels or low vitamin B levels. This is called anemia and can make you feel very tired. Your doctor and your dietician can help you make sure that you get all the vitamins and nutrients you need to grow and to stay healthy Vitamins

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One of the symptoms of IBD is weight loss and poor growth Your doctor will check your weight at every visit and will use a “growth chart” to monitor your growth and to compare it to all the other kids your age Weight loss

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Your doctor may use X-rays, CT scans, and MRI scans to help make the diagnosis of IBD These are special pictures and they do not hurt X-Ray

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YOU are not alone IBD is not your fault, but it is YOUR RESPONSIBILITY We are here to help YOU live your life to its fullest and to do the things YOU want to do Take control. Don’t let IBD take control of YOU and YOUR life. You

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Zo Long!