Sam-FPIES2

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What would you do?:

What would you do?

A new baby boy… :

A new baby boy…

But something's not right.:

But something's not right .

Trying new foods causes me pain, rashes, agitation, and vomiting. :

Trying new foods causes me pain, rashes, agitation, and vomiting .

Children's Hospital of Pennsylvania CHOP gave my parents answers.:

Children's Hospital of Pennsylvania CHOP gave my parents answers.

I was diagnosed with FPIES. :

I was diagnosed with FPIES.

My FPIES symptoms:

My FPIES symptoms

My Cascade of Symptoms include:

My Cascade of Symptoms include pallor Lethargy itchy mouth mottled skin Extreme stomach pains vomiting & diarrhea

I trial new foods before they are considered safe for me. :

I trial new foods before they are considered safe for me.

Slide 14:

Trying millet cookies. A few hours later looking very pale.

I reacted to an ingredient in the millet cookie later that week and became sicker everyday. :

I reacted to an ingredient in the millet cookie later that week and became sicker everyday .

Soy was another trial. :

Soy was another trial.

Soy made me very sick.:

Soy made me very sick.

Foods that I have failed and are not safe for me. :

Foods that I have failed and are not safe for me. Dairy Rice Sweet Potato Corn Soy Sugar intolerances Tapioca

My tiny menu.:

My tiny menu. I have 5 safe ingredients.

#1- Hemp milk and seed:

#1- Hemp milk and seed Hemp milk can be made into popsicles Hemp seeds make cereal and milk Hemp can make formula

I love my hemp milk!:

I love my hemp milk!

#2- Safflower Oil #3- Arrowroot Starch (ingredients in my homemade formula):

#2- Safflower Oil #3- Arrowroot Starch (ingredients in my homemade formula)

#4- Millet puffs:

#4- Millet puffs

#5- Peaches:

#5- Peaches

I’m so happy to eat food that doesn’t cause me tummy pain.:

I’m so happy to eat food that doesn’t cause me tummy pain .

What FPIES doesn’t do…:

What FPIES doesn’t do…

It doesn’t take away from my birthday.:

It doesn’t take away from my birthday. My cake was food-free!

It doesn’t make me look any different.:

It doesn’t make me look any different. I’m so cute on the outside no one ever knows how sick I am on the inside.

It doesn’t stop me from playing.:

It doesn’t stop me from playing. I’m happy when food isn’t hurting me.

It doesn’t stop me from having fun. :

It doesn’t stop me from having fun.

I am happy when I’m with my family. :

I am happy when I’m with my family.

I am quiet and strong. :

I am quiet and strong.

I am sweet and calm. :

I am sweet and calm.

I am Sam:

I am Sam And I have FPIES

To follow me on my journey visit www.fpiesmudpies.blogspot.com:

To follow me on my journey visit www.fpiesmudpies.blogspot.com