MIA

Do you know what the most common cause of newborn disability is? : 

Do you know what the most common cause of newborn disability is?

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It affects more children than Down Syndrome, Fetal Alcohol Syndrome & Spina Bifida…

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Intellectual disabilities Global developmental delay Feeding problems Microcephaly Cerebral palsy Deafness Blindness Autism Seizures and death….

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These are some of the affects of

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CMV (cytomegalovirus)

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And yet it is not protocol for a woman to be advised or screened for CMV at prenatal visits.

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Mia’s story……

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Mia was born with low platelets, feeding problems, breathing & heart issues and was failing to thrive.

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After spending 3 weeks in NICU Mia went home with her parents who at the time thought she would be fine.

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Neither Lauri or her Doctor knew that she had contracted CMV while she was pregnant.

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She didn't know that her little girl would have to fight everyday for the rest of her life.

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Mia has spent almost all of her life in hospital. Every day she suffers due to complications caused by congenital CMV

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Mia has up to 15 absent seizures every day. She spends most of her time sleeping due to the pure exhaustion and intensity of them.

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Six times a day she is fed via a life support machine through her PEG tube because she can not eat.....

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Up to 15 times a day Mia suffers from choking episodes which are life threatening & render her unable to breathe..... These episodes are so disturbing that they can not be included on this presentation

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Every day Mia struggles to regulate her heart rate, temperature, breathing and blood pressure…

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For her parents, Lauri and Jason, every time Mia smiles they are filled with joy every day Mia breathes they breath a sigh of relief. Every day Mia wakes up is a miracle.

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Mia loves watching Dora the explorer, reading books, her therapy dog Amos, her two brothers Jayden & Caleb and of course her Mum & Dad

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On March 30 th 2012 she will be 5 years old Mia is now in palliative care

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wash your hands with soap and water for 15 seconds after feeding a young child, changing nappies, wiping a young child’s nose or handling children’s toys Do not share food, drinks or eating utensils Do not share your toothbrush Do not put a child’s pacifier in your mouth Avoid contact with saliva when kissing a child Clean toys, countertops and other surfaces that come into contact with urine or saliva CMV is transmitted through contact with bodily fluids so there are a few simple steps you can take to avoid exposure:

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Experts believe that by taking these simple steps to avoid exposure Mothers could reduce the number of children with Congenital CMV by half.

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www.ccmvaustralia.org Thank you for taking the time to watch this presentation