Rachel's Disability Presentation

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Fragile X Syndrome: 

Fragile X Syndrome By: Rachel Schilling University of Kentucky IEC 509 201

Etiology: 

Etiology Fragile X is caused by a defect in a gene called FMR-1, which is located on the X chromosome FMR-1 contains DNA of a segment CGG On a normal FMR-1 gene CGG triplet repeat is repeated 5 to 40 times On a person with Fragile X syndrome this CGG segment is repeated 40 to 200 times The more repetitions of CGG triplet repeat the more severe the symptoms are. CGG shuts down the FMR-1 and stops the production of a protein called FMRP.

Characteristics: 

Characteristics Mild to Moderate intellectual disabilities Motor and Language delays Behavior abnormalities similar to Autism Physical features: Large head, long face, prominent forehead and chin, protruding ears, loose joints

Prevalence: 

Prevalence More often in males than females Males= 1 in every 4,000 Females= 1 in every 8,000

Diagnosis: 

Diagnosis Southern Bolt Analysis Determines if the gene has full mutation and its approximate size Polymerase Chain Reaction (PCR) Determines the actual number of CGG repeats

Resources For Families: 

Resources For Families www.FragileX.org www.raredisease.org www.aafp.org www.fraxa.org www.ghr.nlm.nih.gov