Presentation Transcript
Data Element Standards Proposal Family Relationships: Data Element Standards Proposal Family Relationships VCDE Small Group
Mary Cooper, Linda Schmandt, Daniela Smith, Baris Suzek, and Lynne Wilkens
11/29/2007
Issues for Consideration: Issues for Consideration Focus
Capture of text that describes relationships between family members
Harmonize existing caDSR value domains
Specificity
Immediate family (nuclear family – father, mother, children)
Extended family (grandparents, aunts/uncles, etc.)
Family relationships established by law (In-law, Step, etc.)
Applicable Standards/References
HL7 v2.x and 3 Ballot, NHANES (National Health and Nutrition Examination Survey), NHIS (National Health Interview Survey),
DICOM, Hawaii component of the NCI colorectal family registry
Out of Scope
Cultural or religious designation relationships
Living arrangements (other than Domestic Partner)
Lineage, descent groups, clans
Use Cases: Use Cases DICOM
Natural mother
Natural father
Natural sister
Natural brother
Aunt
Halfsister
Halfbrother
Natural grandmother
Natural grandfather
Natural daughter
Natural son
Female first cousin
Male first cousin NHANES (Coded Set – relationship of contact to others in the home)
SPOUSE/EX-SPOUSE NOT LIVING IN HH.. 1
UNMARRIED PARTNER NOT LIVING IN HH. 2
CHILD............................................................ 3
GRANDCHILD............................................... 4
PARENT (MOTHER OR FATHER)............... 5
BROTHER OR SISTER................................. 6
GRANDPARENT........................................... 7
OTHER RELATIVE........................................ 8
LEGAL GUARDIAN....................................... 9
FRIEND......................................................... 10
CO-WORKER................................................ 11
NEIGHBOR................................................... 12
OTHER.......................................................... 13
REFUSED..................................................... 77
DON'T KNOW............................................... 99
Use Cases – HI component of the NCI Colorectal Family Registry : Use Cases – HI component of the NCI Colorectal Family Registry
Proposed Components for Standardization: Proposed Components for Standardization New Data Element Concept
Family Member Relationship
FamilyMember:relationship
(Class:attribute pair)
New Value Domain
Family Member Relationship Type
Enumerated permissible value list
Character data type
New Data Element
Family Member Relationship Type
Recommendation Details: Recommendation Details Data Element Concept Data Element Value Domain
Permissible Value List: Permissible Value List This list is can be extended with current use cases. A hierarchy will be established and synonyms will be captured by NCI Thesaurus (ex. Natural/Biological).
Suggested UML Guidance: Suggested UML Guidance Goal is to provide reusable/searchable metadata for manual and automated curation methods
Standardize CDEs from existing caDSR content
Highly recommended: UML model to fit proposed standard CDE
UML Model Guidance (Highly Recommended): UML Model Guidance (Highly Recommended) Family Member Relationship Type – Public ID 2680002 (current version) Map attribute to Standard CDE UML Model
Questions/Next Steps: Questions/Next Steps
Questions – comments?
VCDE WS - Vote to distribute for caBIG community review