17 Sussex

Slide8: 

Breast Cancer Minimum Patient Information Pathway Page 1 of 2 Referral First Clinic Appointment Information (How to get there, Map, car parking info, Introduction to the diagnostic process & who they will meet, details of Diagnostic process Referral to a Breast Clinic BCC Investigations as appropriate: Stereotactic Core Biopsy MRI Scan Diagnosis Choice of taped consultation Choice of copy letter to GP Introduction to MD Team, how it works & Key Worker (BCN) contact number Breast Cancer and you – coping with the diagnosis BCC Treating Breast Cancer BCC The Cancer Guide Macmillan Research trials (Clinical trials and breast cancer BCC ) List of quality websites * Directory of Cancer Support Groups in Sussex SCN as appropriate: Breast Cancer Care Information Sheets as appropriate The secret C Winstons Wish Understanding breast reconstruction BACUP Pre-Admission Clinic/Pre-Surgery/Surgery Patient Held Record (optional) Lymphoedema BCC Arm exercises after breast surgery BCC Pre-operative consultation with BCN, to cover information e.g.on complexity of reconstruction process. SUSSEX CANCER NETWORK version 003/May 05 Results Clinic Choice of taped consultation Choice of Pathology Report copy Menopausal symptons and Breast Cancer BCC as appropriate: Long term advice: swimming/yoga/complementary therapies/diet Lymphoedema advice Patient Diary

Slide9: 

Breast Cancer Minimum Patient Information Pathway Page 2 of 2 Treatment 1: Chemotherapy Pre-treatment information visit to Unit Breast cancer and hair loss BCC as appropriate Hair advice: ginger, ice cubes Bosom Buddy Booklet, author Veronica Mulcahy Chemotherapy Generic pathway Treatment 3: Endocrine Hormone Therapy – BCC Tamoxifen BCC Arimidex BCC Recent news about ‘Arimidex’ (Anastrozole) SCN Menopausal symptons and Breast Cancer BCC Lymphoedema BCC Dietary advice as appropriate: Ovarian ablation BCC SUSSEX CANCER NETWORK version 003/May 05 Continuing Care/Follow-up Discharge/Continuing Care Pack – to include: ‘What to look for’ details of Follow-up Screening System * Contact telephone numbers Bone health and breast cancer BCC Financial/Benefits information (AC/JM – Generic pathway) as appropriate: Bone Density/Scan guidance for Arimidex* Living with Lymphoedema – BCC Treatment 2: Radiotherapy Advice to patients receiving radiotherapy to the Breast region SCC Details of SCC Radiotherapy Welcome Evenings SCC Radiotherapy- Generic pathway

Slide10: 

Tumour Specific Patient Information Protocol   Generic Patient Information Protocol   Cross-Tumour Patient Information Protocol   Illustration of Information from Protocols offered to each individual patient:           Protocol PickLists

Slide11: 

GP Patient or Carer CNS/Keyworker/ other local Trust staff/source Patient Held Record Patient Information Protocols Fig 3 Patient Access to Information Protocols                                 SCN Website Patient Information Protocols

Slide12: 

Implementation and Delivery:   Patient Information Protocols (PIPs) = framework for implementation and delivery Mirror the agreed Network Tumour Specific Pathways Developed at Network level to set standards and share good practice Developed in consultation with Patients, Carers and Health Care Professionals Include national and locally produced information Avoid duplication of work by adapting resources developed elsewhere to suit local need Are tumour specific – cross-tumour: Chemotherapy, Radiotherapy, Lymphoedema & Generic   -                -          

Slide13: 

RESPONSIBILITIES The NICE Supportive and Palliative Care Guidance : Provider organisations (Acute and Primary Care Trusts) accountable for the delivery of information at a local level. All Patient and Public Information Policies developed by provider organisations must be adhered to at all times. Each Multi-Disciplinary Team must identify a named person responsible for Information delivery within the relevant tumour site. Cancer Networks and NHS Trusts providing cancer services should nominate a lead for cancer information. The Trust-level lead should ensure coherence across types of cancer. He or she should be responsible for ensuring that up-to-date materials are available and that patients actually receive them.

What next !: 

What next ! Further pathway work – Gynae – Renal Generic pathway – Chemotherapy - Radiotherapy Palliative Care - End of Life pathway SCN - Resource directory /web site Develop missing resources Develop information record / audit tool SCN – strategy on patient information – to keep ‘live’!

Recommendations : 

Recommendations Find allies Ensure the health care professionals ‘own’ the work Be patient Listen to associated issues – feedback we created a service improvement report for 04/05 and will do same again 05/06

Lessons Learnt/Learning! : 

Lessons Learnt/Learning! Huge task Essential to have collaborative working Building on existing work Need local champions Patients involvement crucial – plus Patients Forum Identification of service issues and need to link into Service improvement projects

Summary : 

Summary Recommended ‘best practice’ – need to offer information at stages of pathway and recognise needs might change Requires an implementation strategy – written Guidance policy – to embed into practice Sustainability is absolutely crucial Challenges of ownership