So You Think Can Dance

Learning to Dance: 

Learning to Dance Building Family ~ Professional Partnerships through Leadership Training Programs

Slide3: 

“At our best level of existence, we are parts of a family, and at our highest level of achievement, we work to keep the family alive.” ~ Maya Angelou

Slide4: 

Experiences of family ~ professional partnerships

Maternal & Child Health Mission: 

Maternal & Child Health Mission To build a society where healthy children and healthy families live in healthy communities Core values: leadership, diversity, equity, integrity, social justice, partnership & empowerment, and honesty

MCH Training Programs: 

MCH Training Programs “Our vision for the 21st century is that all children, youth, and families will live and thrive in healthy communities served by a quality workforce that helps assure their health and well being.” MCHB MCH Training Program funds public and private non-profit institutions of higher learning to provide leadership training in MCH to achieve this vision http://mchb.hrsa.gov/training/index.asp

Funded Projects by Program: 

Funded Projects by Program Adolescent Health Certificate in MCH Public Health Collaborative Office Rounds Communication Disorders Continuing Education Developmental - Behavioral Pediatrics Distance Learning LEND MCH Institute MCH Pipeline Nursing Nutrition Pediatric Dentistry Pediatric Pulmonary Centers Research Training Enhancement Schools of Public Health & Social Work

Title V Family Involvement: 

Title V Family Involvement Family ~ professional partnerships MCHB strategic plan & block grant OBRA Healthy People 2010 goals NC Division of Public Health responsible for measuring FPP progress The Family Council Family Liasion Specialist

The Family Council for CYSHCN : 

The Family Council for CYSHCN 21 members are diverse across race/ethnicity, geography, income, service use, & family composition Representative of the definition of children and youth with special health care needs Established a new strategic plan in 2006

The Family Council Ultimate Goal: 

The Family Council Ultimate Goal Children & youth with special healthcare needs are healthy & active citizens and leaders

The UNC Consortium: 

The UNC Consortium Initiated in 2000 Comprised of 5 MCHB - funded leadership training programs at UNC MCH/School of Public Health LEND/CDL MCH Nutrition Pediatric Dentistry Social Work

National Performance Measures: 

National Performance Measures The Performance Measures as they relate to leadership training programs… NPM #7 (Family Participation) NPM #11 (Cultural Competence) NPM #59 (Collaboration with Title V)

The Leadership Trainees: 

The Leadership Trainees Selected through competitive application process Students in training for clinical, program development, or policy positions in MCH Varied experiences working with CYSHCN & their families Leadership development program included 5 workshops

Where the dance begins…: 

Where the dance begins…

Partnership Planning: 

Partnership Planning Communication Commitment Equality Skills Trust Respect

Workshop Planning: 

Workshop Planning Developed planning committee of FC members, trainees, & faculty Workshop concept evolved throughout the planning period FC member participants in workshops Readings, assignments, & stories

Workshop Learning Objectives: 

Workshop Learning Objectives To increase trainees’ awareness of disability/ CYSHCN as an integral component of MCH practice and policy To increase trainees’ appreciation of the importance of family ~ professional collaboration To provide trainees with methods of incorporating family perspectives into MCH leadership

The Workshops: 

The Workshops Framework for collaboration Creating a learning community Ground rules: hearing, respecting, & responding Strengths focused Power of stories

Partner Feedback : 

Partner Feedback Formal efforts to gather feedback from Council members Consortium members Trainees Two phases of feedback Following each workshop Feedback shaped future directions

Trainee Comments: 

Trainee Comments Appreciated family participation “… shed a different light to our conversations & brought a dose of reality to the table” “… remind us about our insensitivities & the reason we are all doing this” Concerns about application Policy and program development International work & research Populations other than CYSHCN

Family Council Feedback: 

Family Council Feedback Overall, positive experience Enjoyed open discussion & energy of trainees Developed an appreciation for the importance of training professionals in policy & program development Not only direct care providers Increased personal leadership skills

Reflections: 

Reflections Clinical, policy, & individual cultures and experiences shape perceptions The presence of the rich culture of families results in participants confronting the issues more directly Family involvement on a continuum from direct care interaction to family professional collaboration at the systems level Leadership development requires continuous reflection

Reflections: 

Reflections Consortium in full agreement that the partnership is valuable on multiple levels Strengthened relationships between Title V and the training programs Broadened faculty understanding of CYSHCN systems of care and experiences of families

Family Council Future Planning: 

Family Council Future Planning FC members unanimously agree to continue partnership with UNC through other leadership training workshops on other projects As a result of experiences this year, FC members are more interested in advocacy more aware of continuing education possibilities

Consortium Future Planning: 

Consortium Future Planning Explore the potential for family members to participate as a discipline in the leadership development program Integrating family participation into grant proposals Systematically identifying trainees to bridge Title V and academia

Future Planning: 

Future Planning Allow the workshops to count for formal credits for family members Develop a collaborative product Advocacy project Legislative research Policy development Increase leadership capacity across the Family Council Leverage resources to build MCH capacity

Presenters: 

Presenters Joy Hales jhales@triad.rr.com Marlyn Wells Marlyn.wells@ncmail.net Marcia Roth Marcia_roth@unc.edu Julia Wacker jlwacker@gmail.com