logging in or signing up Kaitlyn Evie Baby_Girl_Evie Download Post to : URL : Related Presentations : Share Add to Flag Embed Email Send to Blogs and Networks Add to Channel Uploaded from authorPOINT lite Insert YouTube videos in PowerPont slides with aS Desktop Copy embed code: (To copy code, click on the text box) Embed: URL: Thumbnail: WordPress Embed Customize Embed The presentation is successfully added In Your Favorites. Views: 16 Category: Occasions/ Fam.. License: All Rights Reserved Like it (0) Dislike it (0) Added: November 02, 2009 This Presentation is Public Favorites: 0 Presentation Description No description available. Comments Posting comment... Premium member Presentation Transcript Kaitlyn Evie : Kaitlyn Evie MPS IV Type A – Morquio Syndrome Tiny But Mighty! Slide 2: I was born on September 1, 2006. Slide 3: When I was 18 months old, my parents took me to the doctor for my knock knees, which is when they discovered several abnormalities throughout my whole body. Slide 4: Just before turning 3, I was diagnosed with MPS IV, Morquio Syndrome. Slide 5: Morquio Syndrome is a very rare storage disease that primarily affects the bones. Slide 6: One trait of Morquio Syndrome is short stature… I will most likely grow to about 3-4 feet tall. Slide 7: Morquio Syndrome is a progressive disease, meaning it will get worse over time. Slide 8: I have been told to expect 30 – 40 surgeries and countless tests to keep a close eye on my development. Slide 9: Some surgeries I can expect are: neck fusion, hip replacements, and knee, wrist and ankle corrections. Slide 10: My life expectancy is anywhere from 20 – 60 years of age, depending on the progression of the disease. Slide 11: Due to the rarity of this disease, there is very little known about it. Slide 12: At this time, there is no cure for Morquio Syndrome. Slide 13: Clinical trials have begun in Europe and will be in the US by 2010. Hopefully, a successful treatment will soon follow. Slide 14: I have been given a challenge that I didn’t ask for, but I will take it and become a better, stronger person because of it. Slide 15: I know that my life is precious, and I don’t plan to waste any of it worrying when I can be enjoying! Slide 16: That’s why they call me, “Kaitlyn Evie, Tiny but Mighty.” You do not have the permission to view this presentation. In order to view it, please contact the author of the presentation.
Kaitlyn Evie Baby_Girl_Evie Download Post to : URL : Related Presentations : Share Add to Flag Embed Email Send to Blogs and Networks Add to Channel Uploaded from authorPOINT lite Insert YouTube videos in PowerPont slides with aS Desktop Copy embed code: (To copy code, click on the text box) Embed: URL: Thumbnail: WordPress Embed Customize Embed The presentation is successfully added In Your Favorites. Views: 16 Category: Occasions/ Fam.. License: All Rights Reserved Like it (0) Dislike it (0) Added: November 02, 2009 This Presentation is Public Favorites: 0 Presentation Description No description available. Comments Posting comment... Premium member Presentation Transcript Kaitlyn Evie : Kaitlyn Evie MPS IV Type A – Morquio Syndrome Tiny But Mighty! Slide 2: I was born on September 1, 2006. Slide 3: When I was 18 months old, my parents took me to the doctor for my knock knees, which is when they discovered several abnormalities throughout my whole body. Slide 4: Just before turning 3, I was diagnosed with MPS IV, Morquio Syndrome. Slide 5: Morquio Syndrome is a very rare storage disease that primarily affects the bones. Slide 6: One trait of Morquio Syndrome is short stature… I will most likely grow to about 3-4 feet tall. Slide 7: Morquio Syndrome is a progressive disease, meaning it will get worse over time. Slide 8: I have been told to expect 30 – 40 surgeries and countless tests to keep a close eye on my development. Slide 9: Some surgeries I can expect are: neck fusion, hip replacements, and knee, wrist and ankle corrections. Slide 10: My life expectancy is anywhere from 20 – 60 years of age, depending on the progression of the disease. Slide 11: Due to the rarity of this disease, there is very little known about it. Slide 12: At this time, there is no cure for Morquio Syndrome. Slide 13: Clinical trials have begun in Europe and will be in the US by 2010. Hopefully, a successful treatment will soon follow. Slide 14: I have been given a challenge that I didn’t ask for, but I will take it and become a better, stronger person because of it. Slide 15: I know that my life is precious, and I don’t plan to waste any of it worrying when I can be enjoying! Slide 16: That’s why they call me, “Kaitlyn Evie, Tiny but Mighty.”